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Celgene is dedicated to accelerating action to address unmet needs for patients living with psoriatic arthritis and psoriasis

 
With the help of Celgene, a coalition of 4 patient advocacy organizations released a consensus statement emphasizing their commitment to speeding diagnosis and improving treatment rates and disease management through education and support services for both healthcare professionals and patients.

Participating organizations

  • International Federation of Psoriasis Associations (IFPA)
  • European Federation of Psoriasis Associations (EUROPSO)
  • National Psoriasis Foundation (NPF)
  • The Arthritis Society, Canada

Objectives

  • Raise awareness of the impact of psoriasis and psoriatic arthritis
  • Address common unmet needs of people around the globe with psoriasis and psoriatic arthritis

Proposed actions to deliver on unmet needs

Actions were split between:

actions were split between patient organizations

Patient organizations

Action 1

Reduce the time to diagnose psoriasis and psoriatic arthritis

reduce the time to diagnose with social media and printed materials
Use social media and printed materials

Action 2

Improve access to medical specialists and the most appropriate treatments

improve access to medical specialists
Increase amount of patient materials, information, and support services
educate on the benefits of early and effective treatment
Educate on benefits of early and effective treatment
utlilize policy makers and healthcare professionals

Stakeholders

Policy makers and healthcare professionals

initiate training programs and web based educational tools
Initiate training programs and web-based educational tools
promote use of standardized and effective diagnostic tools
Promote use of standardized and effective diagnostic tools
establish a multidisciplinary approach
Establish a multidisciplinary approach
support continued development of standards of care
Support continued development of standards of care

Action 3

Assist patients, caregivers, and healthcare professionals in managing burden of disease through support services

assist patients, caregivers, and healthcare professionals in managing burden of disease through support services

Proposed recommendations for improving the identification and management of psoriatic arthritis

define treatment response and remission

Define treatment response and remission

raise awareness of psoriasis burden among hcps through educational activities

Raise awareness of PsA burden among HCPs through educational activities

Pharmacoeconomic Evaluation

Undertake pharmacoeconomic evaluation of therapies

develop and validate treatment algorithm

Develop and validate treatment algorithm

improve communication between healthcare professionals and patients
Improve communication between healthcare professionals and patients

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